Latest News

Patients for Prescription Access

PFPA Applauds Filing of Federal 340B Legislation

Fixes to federal program must be done on federal level, not state by state to ensure program impacts the patient population it was intended to serve.

Prioritize patients over insurer profits

Under the ‘copay accumulator’ practice, the insurer is collecting from both the copay program and the patient. They are getting paid twice.
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On May 2nd, the Joint committee on Financial Services heard testimony on the two bills in MA that seek to ban copay accumulators. Marissa Shackleton, executive director of the Elliot Lewis Center for Multiple Sclerosis Care, testified that copay accumulator adjustment programs are harmful to patient care.

“Not passing these bills would force patients to choose between paying for their medication and paying for their families’ needs,” Shackleton said. “Not passing these bills will lead to greater health care inequity, as only those who afford it will get the best medications.” 
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Providence Journal:  "RI must join other states that have laws prohibiting copay accumulator programs" - Opinion 

Have you ever gone out to dinner and used a gift certificate someone had given you? Kind of a nice treat, right?  Well, imagine that you just wrapped up your meal, gave your server the gift certificate, and then were told that the restaurant will take the associated dollars but not apply it to your check. You still owe the full amount for the meal, because the money for dinner must
come from your pocket. What?  Read More

Get rid of the copay accumulator 

It's painful to watch the position patients are put in.

Cost should never be a factor for patients with lupus, cystic fibrosis, and other chronic and life-threatening illnesses.

Drug Benefit Managers May Be Drawn Into Health Care Debate

A group of bills before the Financial Services Committee would impose new regulations on pharmacy benefit managers, or PBMs, in Massachusetts, ranging from limits on their ability to steer consumers toward aligned corporate chains to new reporting requirements that could provide greater insight into how the managers affect health care costs. 

Latest Press Release 

MASSACHUSETTS PATIENTS, ADVOCATES, HEALTHCARE PROVIDERS TO LAWMAKERS: CO-PAY ACCUMULATOR PROGRAMS PUT PATIENT HEALTH AT RISK

Out of Pocket Costs

Commonwealth Magazine - Cost Barriers Rise for Patients

Many patients dealing with chronic diseases, diseases that have limited treatment options, such as people living with HIV or hepatitis C, take advantage of co-pay coupons offered by prescription drug manufacturers to defray the medication cost.

Accumulator

2021

Should Double Charging Patients for Medication be Legal?  Opinion

Imagine going with a friend to your favorite restaurant. When the bill comes, your friend generously offers to cover it—and plops down a gift card he received for Christmas. The waiter charges the card without issue. But as you get up to leave, the waiter demands more cash. 

Legislation

Boston Herald

Thousands of Massachusetts residents risk losing access to discounts on vital prescription drugs by the end of this year without action from state lawmakers.

Insurance Practices

How PBMs are manipulating out of pocket costs

By Richard Pezzillo
It is no secret that healthcare costs continue to rise, with premium increases topping 58 percent since 2006, according to Kaiser Family Foundation; but what may be surprising to lawmakers on Beacon Hill, is that patient out of pocket costs, such as deductibles, co-insurance and higher specialty pharmacy tiers have outpaced premium increases by four times, which speaks directly to tactics being taken by health plans and their pharmacy benefit managers (PBMs). 

PBMs

Patients who rely on expensive medication worry about changes to discount programs

Tonight, a proposal to change copay assistance that would cost people more money in the long run. FOX 25 news reporter, Jim Morelli, has been looking into this issue, and Jim….some patients fear this is going to prevent them from getting their medication.

CoPay Assistance

 

National Survey

Americans Across Political Parties Want the
Federal Government to Require All Copay Assistance Be Applied Towards a Patient's Out-of-Pocket Costs

Finance

Massachusetts Co-Pay Assistance Programs

A coalition of advocacy groups representing thousands of patients in Massachusetts, today urged lawmakers on the FY ’21 Budget Conference Committee to include an extension of a law that allows thousands of patients, living with chronic diseases, to access medications needed to manage their illnesses and lead productive lives.

Accumulator

PBMs are pocking patient assistant money

Unfortunately, PBMs are pushing insurers and large employers to adopt accumulator adjustment programs that prevent the full out‐of‐pocket cost of certain medications from counting towards a patient’s annual deductible. Under these programs, only the amount a patient pays at the pharmacy counter — after a manufacturer coupon has lowered the patient’s cost sharing — will count towards their deductible.

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